Table 3 Theoretical model Grasping the lifeline
From: Patients in 24-hour home care striving for control and safety
LOSING the | GRASPING the | HOLDING on to the |
LIFELINE | LIFELINE | LIFELINE |
Lack of control | Taking control | In control |
Being mastered by others | Striving to be one’s own master | One’s own master |
Having HC assistants not suited to needs | Selecting HC assistants | HC assistants suited to needs |
In unsafe hands | Seeking safe hands | In safe hands |
Feeling unsafe in care procedures | Instructing unskilled HC assistants | Safe in care procedures |
Feeling unseen and unheard | Trying to be seen and heard | Seen and heard |
Insecure in the care system | Navigating the care system | Secure in the care system |
Lack of interest | Making own contacts | Good contact |
Lack of connection | Coordinating own care | Connection |