Table 1 Basic characteristics of adult patients with β-thalassemia major and their informal caregivers (n = 75)
Variables | N/Median(Mean ± SD) | Percent (%) |
|---|---|---|
Patient | ||
Sex | ||
Female | 37 | 49.3 |
Male | 38 | 50.7 |
Age (years) | 22(24.69 ± 5.59) | |
≤ 22 | 37 | 50.7 |
> 22 | 38 | 49.3 |
Education level | ||
High school and below | 37 | 49.3 |
Above high school | 38 | 50.7 |
Full-time job | ||
No | 49 | 65.3 |
Yes | 26 | 34.7 |
Total medical cost (￥) | 810,000(987,506.32 ± 784,960.41) | |
≤ 810,000 | 38 | 49.3 |
> 810,000 | 37 | 50.7 |
Comorbidities | ||
No | 25 | 33.3 |
Yes | 50 | 66.7 |
Interruption of blood transfusion therapy | ||
No | 42 | 56 |
Yes | 33 | 44 |
Interruption of iron chelation therapy | ||
No | 46 | 61.3 |
Yes | 29 | 38.7 |
Social support | 30(30.57 ± 5.54) | |
Objective support (points) | 6(6.43 ± 1.62) | |
≤ 6 | 41 | 54.7 |
> 6 | 34 | 45.3 |
Subjective support (points) | 17(17.84 ± 4.45) | |
≤ 17 | 39 | 52 |
> 17 | 36 | 48 |
Utilization (points) | 6(6.31 ± 1.74) | |
≤ 6 | 44 | 58.7 |
> 6 | 31 | 41.3 |
Informal caregiver | ||
Sex | ||
Female | 56 | 74.7 |
Male | 19 | 25.3 |
Age (years) | 51(50.60 ± 9.16) | |
≤ 51 | 38 | 49.3 |
> 51 | 37 | 50.7 |
Marital status | ||
Single | 20 | 26.7 |
Married | 55 | 73.3 |
Education level | ||
Middle school and below | 44 | 58.7 |
Above middle school | 31 | 41.3 |
Annual household income (￥) | 60,000(84,005.33 ± 101,213.21) | |
≤ 60,000 | 38 | 49.3 |
> 60,000 | 37 | 50.7 |
Monthly caregiving (days) | 7(12.59 ± 11.58) | |
≤ 7 | 39 | 52 |
> 7 | 36 | 48 |
With the help of other caregivers | ||
No | 53 | 70.7 |
Yes | 22 | 29.3 |
Caring for others | ||
No | 28 | 37.3 |
Yes | 47 | 62.7 |