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Table 1 Characteristics of participating patients. At time of enrolment, 12 months and 24 months; and consumed outpatient and inpatient care during study participation

From: Patient perceived quality of cirrhosis care– adjunctive nurse-based care versus standard medical care: a pragmatic multicentre randomised controlled study

Characteristics

Enrolment

12 months

24 months

Intervention group

(N = 84)

n (%)

Control group (N = 83)

n (%)

Intervention group

(N = 54)

n (%)

Control group

(N = 58)

n (%)

Intervention group

(N = 48)

n (%)

Control group (N = 46)

n (%)

Female gender

37 (44)

35 (42)

24 (44)

26 (45)

20 (42)

21 (46)

Age (years)

      

 18–39

2 (2)

3 (4)

0

2 (3)

0 (0)

1 (2)

 40–65

40 (48)

38 (46)

23 (43)

24 (42)

22 (46)

19 (41)

 65–85

42 (50)

42 (50)

31 (57)

32 (55)

26 (54)

26 (57)

Country of birth

      

 Sweden

78 (93)

76 (91)

51 (94)

54 (94)

45 (94)

43 (94)

 Europe

5 (6)

3 (4)

3 (6)

2 (3)

3 (6)

1 (2)

 Other

1 (1)

4 (5)

0

2 (3)

0 (0)

2 (4)

Education

      

 Elementary school

23 (27)

19 (23)

18 (33)

14 (24)

15 (31)

12 (26)

 Upper secondary school

41 (49)

41 (49)

24 (45)

25 (43)

23 (48)

22 (48)

 University

20 (24)

23 (28)

12 (22)

19 (33)

10 (21)

12 (26)

Occupation

      

 Working/studying

17 (21)

15 (18)

8 (15)

10 (17)

10 (22)

7 (15)

 Retired

39 (47)

43 (52)

28 (52)

33 (57)

23 (48)

28 (62)

 Disability pension

4 (5)

2 (3)

4 (7)

2 (3)

3 (6)

1 (2)

 Non-employed

8 (9)

3 (4)

3 (6)

1 (2)

1 (2)

1 (2)

 Partially sick-leave

8 (9)

8 (9)

4 (7)

4 (7)

5 (10)

1 (2)

 Full time sick leave

1 (1)

4 (5)

1 (2)

3 (5)

1 (2)

3 (6)

 Other occupation

7 (8)

8 (9)

6 (11)

5 (9)

5 (10)

5 (11)

Cirrhosis diagnosis

      

 Alcohol related liver disease

48 (57)

38 (46)

27 (50)

28 (48)

23 (47)

18 (39)

 Autoimmune hepatitis

6 (7)

7 (8)

6 (10)

6 (10)

6 (13)

6 (13)

 Viral hepatitis C

4 (5)

3 (4)

2 (4)

1 (2)

2 (4)

1 (2)

 Non-alcoholic fatty liver disease

14 (17)

8 (9)

10 (19)

6 (10)

10 (20)

5 (11)

 Cryptogenic

9 (11)

20 (25)

8 (15)

12 (21)

6 (12)

12 (26)

 Other

3 (3)

7 (8)

1 (2)

5 (9)

1 (4)

4 (9)

Child Pugh group

      

 A

52 (62)

47 (57)

39 (72)

36 (62)

31 (65)

30 (65)

 B

26 (31)

31 (37)

14 (26)

22 (38)

15 (31)

16 (35)

 C

6 (7)

5 (6)

1 (2)

0 (0)

2 (4)

0 (0)

MELD score

      

 < 10

44 (52)

41 (49)

31 (57)

31 (54)

24 (50)

22 (48)

 10–15

29 (35)

33 (40)

20 (37)

25 (43)

21 (44)

22 (48)

 > 15

11 (13)

9 (11)

3 (6)

2 (3)

3 (6)

2 (4)

Drugs

      

 Diuretics

44 (52)

44 (53)

27 (50)

29 (50)

24 (52)

21 (46)

 Lactulose

33 (39)

35 (42)

17 (31)

23 (40)

17 (37)

17 (37)

 Rifaximin

10 (12)

4 (5)

5 (9)

2 (3)

5 (11)

2 (4)

 non-selective beta-blockers

32 (38)

24 (29)

22 (41)

15 (26)

20 (44)

8 (17)

Comorbidity

      

 None

50 (60)

49 (59)

29 (54)

33 (57)

27 (56)

27 (59)

 1–2

34 (40)

30 (36)

25 (46)

21 (36)

21 (44)

15 (33)

 > 2

0 (0)

4 (5)

0 (0)

4 (7)

0 (0)

4 (8)

Outpatient care§

      

 Physician

N/A

N/A

69 (1.2)

81 (1.4)

62 (1.3)

53 (1.2)

 Intervention Nurse

N/A

N/A

140 (2.6)

N/A

135 (2.8)

N/A

Inpatient care§

      

 Numbers of admissions

N/A

N/A

28 (0.5)

17 (0.3)

30 (0.6)

25 (1)

 Days at hospital

N/A

N/A

78 (1.3)

178 (3)

87 (1.7)

116 (2)

Other team members

      

 Dietitian

N/A

N/A

14 (26)

7 (12)

5 (10)

8 (17)

 Physiotherapist

N/A

N/A

5 (9)

1 (2)

3 (6)

1 (2)

 Social counsellor

N/A

N/A

4 (7)

3 (5)

6 (13)

2 (4)

  1. LC due to toxicity, cardiaque, primary biliary cholangitis or α-1 antitrypsinemia
  2. Missing data at 12 months (n = 4), 24 months (n = 3
  3. § Reported in total care needs for each group with mean of number of events in brackets