Table 3 Categories and Exemplars of Patient-nominated Effects of Neutropenia

Physical Complaints

   Tired, fatigued, exhausted, weak, feeling "drained"

If I walk from one room to the next, I'm worn out.

   Reduced sexual activity

It has definitely slowed down. I don't have a great deal of interest.

Daily Routine Disruptions

   Loss of daily routine

I have stopped going to church and taking my son to school.

   Difficulties with household activities

I have stopped most everything. I am not doing my housework.

Negative Thought and Self Evaluation

   Worrying about paying for extra care needed

If I don't work, I don't get paid. It's getting very scary.

   Feeling useless/helpless, letting people down

I feel guilty when I see other people doing work I should be doing.

Negative Emotions

   Feeling down

I feel like giving up. I just wish it would all end.

   Feeling anxious

I am scared. I hope I don't have to go through this (neutropenia) the next three times I come here.

Social Relationships

   Decreased social contacts and activity

I can't spend time with other people because I am sick.

   Avoiding crowds

I don't go to church because someone might hug me or sneeze near me.