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Table 2 Unmet support needs according to FCSA tool ( N = 32)

From: Unmet support needs of early-onset dementia family caregivers: a mixed-design study

Dimension

Need

Would be usefuln(%)

1. Need to help you care for your relative

More information on:

Type of help available and how to get it

25 (78)

 

Financial assistance available and how to apply for it

23 (72)

 

Your relative’s illness and treatment

13 (41)

 

How to adapt home better for providing care

13 (41)

 

Who to contact in case of emergency

13 (41)

More help:

From your family and your relative’s family

20 (63)

 

To learn skills you need to care for your relative

19 (59)

 

With physical aspects of providing care

11 (34)

More help to talk openly

  

about your care

  

situation:

With your family or your relative’s family

17 (53)

 

With other caregivers (e.g., when you feel lonely)

16 (50)

 

About alternative solutions to homecare

16 (50)

 

With your relative

14 (44)

 

With your employer

1 (3)

2. Need to make life better for your relative

 

Make relative feel still valued as a person

23 (72)

 

Offer relative fun and stimulating leisure activities

22 (69)

 

Allow relative more contact with friends

20 (63)

 

Allow relative more contact with own family and yours

17 (53)

 

Have someone considerate to keep relative company and to talk to

16 (50)

 

Allow relative to continue living at home

13 (41)

 

Ensure relative is free of pain and discomfort

10 (31)

 

Ensure relative feels clean and comfortable

9 (28)

3. Need to make life better for you

 

To be able to reduce the stress you feel

24 (75)

 

To have more free time for activities you enjoy

22 (69)

 

To be able to take a break or a holiday

19 (59)

 

To be able to set your limits as a caregiver

19 (59)

 

To be able to get a good night’s sleep

15 (47)

 

To do fun things together with your relative

15 (47)

 

To spend more time with your family

13 (41)

 

To go on working

10 (31)

 

If people around you (e.g., your relative, family, showed their appreciation for the care you provide friends)

9 (28)