From: Unmet support needs of early-onset dementia family caregivers: a mixed-design study
Dimension | Need | Would be usefuln(%) |
---|---|---|
1. Need to help you care for your relative | ||
More information on: | Type of help available and how to get it | 25 (78) |
Financial assistance available and how to apply for it | 23 (72) | |
Your relative’s illness and treatment | 13 (41) | |
How to adapt home better for providing care | 13 (41) | |
Who to contact in case of emergency | 13 (41) | |
More help: | From your family and your relative’s family | 20 (63) |
To learn skills you need to care for your relative | 19 (59) | |
With physical aspects of providing care | 11 (34) | |
More help to talk openly | ||
about your care | ||
situation: | With your family or your relative’s family | 17 (53) |
With other caregivers (e.g., when you feel lonely) | 16 (50) | |
About alternative solutions to homecare | 16 (50) | |
With your relative | 14 (44) | |
With your employer | 1 (3) | |
2. Need to make life better for your relative | ||
Make relative feel still valued as a person | 23 (72) | |
Offer relative fun and stimulating leisure activities | 22 (69) | |
Allow relative more contact with friends | 20 (63) | |
Allow relative more contact with own family and yours | 17 (53) | |
Have someone considerate to keep relative company and to talk to | 16 (50) | |
Allow relative to continue living at home | 13 (41) | |
Ensure relative is free of pain and discomfort | 10 (31) | |
Ensure relative feels clean and comfortable | 9 (28) | |
3. Need to make life better for you | ||
To be able to reduce the stress you feel | 24 (75) | |
To have more free time for activities you enjoy | 22 (69) | |
To be able to take a break or a holiday | 19 (59) | |
To be able to set your limits as a caregiver | 19 (59) | |
To be able to get a good night’s sleep | 15 (47) | |
To do fun things together with your relative | 15 (47) | |
To spend more time with your family | 13 (41) | |
To go on working | 10 (31) | |
If people around you (e.g., your relative, family, showed their appreciation for the care you provide friends) | 9 (28) |