Table 2 Differences in characteristics of the care situation at baseline between people with dementia living at home, admitted to a nursing home and deceased at year 1; mean (SD) or %
Characteristics | Baseline | Year 1 | ||||
|---|---|---|---|---|---|---|
Total (n = 198) | Home (n = 74) | Nursing home (n = 82) | Deceased (n = 42) | p | ||
Patients | ||||||
 Age (years) | 81.3 (6.6) | 80.0 (6.8) | 82.4 (6.0) | 81.7 (7.0) | * | |
 Gender (% female) | 105 (53.0) | 37 (50.0) | 51 (62.2) | 17 (40.5) | * | |
 Marital status (% single) | 72 (36.4) | 22 (29.7) | 36 (43.9) | 14 (33.3) | n.s. | |
 Lives alone (% yes) | 65 (32.8) | 20 (27.0) | 31 (37.8) | 14 (33.3) | n.s. | |
 Health status (VAS 0–10) | 5.8 (1.9) | 5.9 (1.8) | 6.1 (1.9) | 5.3 (2.0) | * | |
 Co-morbidity (% yes) | 155 (78.3) | 61 (82.4) | 58 (70.7) | 36 (85.7) | * | |
 Needs constant supervision (% yes) | 45 (22.7) | 11 (14.9) | 24 (29.3) | 10 (23.8) | * | |
 Care dependence (VAS 0–10) | 7.0 (2.4) | 6.5 (2.4) | 7.4 (2.5) | 7.2 (2.3) | ** | |
Informal carers | ||||||
 Age (years) | 66.6 (12.9) | 68.6 (12.8) | 64.6 (13.0) | 66.6 (12.7) | n.s. | |
 Gender (% female) | 133 (67.2) | 47 (63.5) | 53 (64.6) | 33 (78.6) | n.s. | |
 Marital status (% single) | 33 (16.7) | 13 (17.6) | 16 (19.5) | 4 (9.5) | n.s. | |
 Children at home (% yes) | 19 (9.6) | 7 (9.5) | 9 (11.0) | 3 (7.1) | n.s. | |
 Education level (% high) | 54 (27.3) | 20 (27.0) | 23 (28.0) | 11 (26.2) | n.s. | |
 Employed (% yes) | 57 (28.8) | 16 (21.6) | 31 (37.8) | 10 (23.8) | * | |
 Health status (VAS 0–10) | 7.3 (1.6) | 7.2 (1.8) | 7.4 (1.4) | 7.1 (1.6) | n.s. | |
 Well-being (VAS 0–10) | 6.4 (1.8) | 6.5 (1.7) | 6.6 (1.6) | 5.8 (2.1) | * | |
Relationship | ||||||
 Care recipient is partner (% yes) | 109 (55.1) | 48 (64.9) | 36 (43.9) | 25 (59.5) | ** | |
 Care recipient is parent (in-law) (% yes) | 74 (37.4) | 21 (28.4) | 38 (46.3) | 15 (35.7) | * | |
 Co-residents (% yes) | 116 (58.6) | 50 (67.6) | 41 (50.0) | 25 (59.5) | * | |
Objective burden | ||||||
 Duration of caregiving (years) | 3.2 (2.0) | 3.2 (2.1) | 3.2 (1.8) | 3.4 (1.8) | n.s. | |
 Intensity of caregiving | (in days per week) | 4.9 (2.7) | 5.2 (2.6) | 4.5 (2.7) | 5.1 (2.7) | n.s. |
(in hours per week) | 38.6 (41.5) | 37.0 (42.2) | 33.7 (47.7) | 51.0 (36.7) | * | |
Formal care at home (% yes) | 146 (73.7) | 53 (71.6) | 56 (68.3) | 37 (88.1) | * | |
Support by other informal carers (% yes) | 108 (54.5) | 34 (45.9) | 47 (57.3) | 27 (64.3) | n.s. | |
Adjustments: | - Adjusted working hours (if applicablea) | 49 (24.6) | 0 (0.0) | 24 (29.0) | 21 (50.0) | ** |
| Â | - Reduced volunteer work (if applicableb) | 81 (40.8) | 30 (40.0) | 39 (47.8) | 11 (27.3) | n.s. |
| Â | - Abandoned hobbies (if applicablec) | 83 (41.7) | 24 (32.3) | 40 (48.6) | 19 (44.1) | n.s. |
Subjective burden | ||||||
 Caregiver Strain Index | 7.9 (3.0) | 7.1 (3.0) | 8.2 (2.7) | 8.6 (2.8) | ** | |
 Self-Rated Burden | 6.0 (2.2) | 5.6 (2.3) | 6.4 (1.9) | 5.9 (2.2) | * | |
Anticipated perseverance time | ||||||
 Anticipated perseverance time (in months) | 17.9 (11.0) | 22.2 (9.3) | 14.8 (11.1) | 16.4 (11.2) | *** | |
  % Pt > 2 years | 79 (39.9) | 40 (54.1) | 24 (29.3) | 15 (35.7) | *** | |
  % Pt > 1 year | 118 (59.6) | 58 (78.4) | 39 (47.6) | 21 (50.0) | *** | |
  % Pt > 6 months | 157 (79.3) | 70 (94.6) | 55 (67.1) | 32 (76.2) | *** | |