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Table 2 Differences in characteristics of the care situation at baseline between people with dementia living at home, admitted to a nursing home and deceased at year 1; mean (SD) or %

From: The perseverance time of informal carers for people with dementia: results of a two-year longitudinal follow-up study

Characteristics Baseline Year 1
Total (n = 198) Home (n = 74) Nursing home (n = 82) Deceased (n = 42) p
Patients
 Age (years) 81.3 (6.6) 80.0 (6.8) 82.4 (6.0) 81.7 (7.0) *
 Gender (% female) 105 (53.0) 37 (50.0) 51 (62.2) 17 (40.5) *
 Marital status (% single) 72 (36.4) 22 (29.7) 36 (43.9) 14 (33.3) n.s.
 Lives alone (% yes) 65 (32.8) 20 (27.0) 31 (37.8) 14 (33.3) n.s.
 Health status (VAS 0–10) 5.8 (1.9) 5.9 (1.8) 6.1 (1.9) 5.3 (2.0) *
 Co-morbidity (% yes) 155 (78.3) 61 (82.4) 58 (70.7) 36 (85.7) *
 Needs constant supervision (% yes) 45 (22.7) 11 (14.9) 24 (29.3) 10 (23.8) *
 Care dependence (VAS 0–10) 7.0 (2.4) 6.5 (2.4) 7.4 (2.5) 7.2 (2.3) **
Informal carers
 Age (years) 66.6 (12.9) 68.6 (12.8) 64.6 (13.0) 66.6 (12.7) n.s.
 Gender (% female) 133 (67.2) 47 (63.5) 53 (64.6) 33 (78.6) n.s.
 Marital status (% single) 33 (16.7) 13 (17.6) 16 (19.5) 4 (9.5) n.s.
 Children at home (% yes) 19 (9.6) 7 (9.5) 9 (11.0) 3 (7.1) n.s.
 Education level (% high) 54 (27.3) 20 (27.0) 23 (28.0) 11 (26.2) n.s.
 Employed (% yes) 57 (28.8) 16 (21.6) 31 (37.8) 10 (23.8) *
 Health status (VAS 0–10) 7.3 (1.6) 7.2 (1.8) 7.4 (1.4) 7.1 (1.6) n.s.
 Well-being (VAS 0–10) 6.4 (1.8) 6.5 (1.7) 6.6 (1.6) 5.8 (2.1) *
Relationship
 Care recipient is partner (% yes) 109 (55.1) 48 (64.9) 36 (43.9) 25 (59.5) **
 Care recipient is parent (in-law) (% yes) 74 (37.4) 21 (28.4) 38 (46.3) 15 (35.7) *
 Co-residents (% yes) 116 (58.6) 50 (67.6) 41 (50.0) 25 (59.5) *
Objective burden
 Duration of caregiving (years) 3.2 (2.0) 3.2 (2.1) 3.2 (1.8) 3.4 (1.8) n.s.
 Intensity of caregiving (in days per week) 4.9 (2.7) 5.2 (2.6) 4.5 (2.7) 5.1 (2.7) n.s.
(in hours per week) 38.6 (41.5) 37.0 (42.2) 33.7 (47.7) 51.0 (36.7) *
Formal care at home (% yes) 146 (73.7) 53 (71.6) 56 (68.3) 37 (88.1) *
Support by other informal carers (% yes) 108 (54.5) 34 (45.9) 47 (57.3) 27 (64.3) n.s.
Adjustments: - Adjusted working hours (if applicablea) 49 (24.6) 0 (0.0) 24 (29.0) 21 (50.0) **
  - Reduced volunteer work (if applicableb) 81 (40.8) 30 (40.0) 39 (47.8) 11 (27.3) n.s.
  - Abandoned hobbies (if applicablec) 83 (41.7) 24 (32.3) 40 (48.6) 19 (44.1) n.s.
Subjective burden
 Caregiver Strain Index 7.9 (3.0) 7.1 (3.0) 8.2 (2.7) 8.6 (2.8) **
 Self-Rated Burden 6.0 (2.2) 5.6 (2.3) 6.4 (1.9) 5.9 (2.2) *
Anticipated perseverance time
 Anticipated perseverance time (in months) 17.9 (11.0) 22.2 (9.3) 14.8 (11.1) 16.4 (11.2) ***
  % Pt > 2 years 79 (39.9) 40 (54.1) 24 (29.3) 15 (35.7) ***
  % Pt > 1 year 118 (59.6) 58 (78.4) 39 (47.6) 21 (50.0) ***
  % Pt > 6 months 157 (79.3) 70 (94.6) 55 (67.1) 32 (76.2) ***
  1. aNumber of respondents employed: n = 47 (total); n = 16 (home); n = 31 (nursing home)
  2. bNumber of respondents doing volunteer work: n = 38 (total); n = 15 (home); n = 23 (nursing home)
  3. cNumber of respondents with a hobby: n = 134 (total); n = 62 (home); n = 72 (nursing home)
  4. *p < 0.10
  5. **p < 0.05
  6. ***p < 0.01; n.s. = not significant