Characteristic | Anticipated Pt > 1 year | Realized Pt > 1 year | |||||
---|---|---|---|---|---|---|---|
 | No (n = 80) | Yes (n = 118) | p | No (n = 60) | Yes (n = 58) | p | |
Patients | |||||||
 Age (years) | 82.0 (5.6) | 80.9 (7.1) | n.s. | 82.0 (7.2) | 79.8 (6.0) | * | |
 Gender (% female) | 36 (45.0) | 69 (58.5) | ** | 36 (60.0) | 33 (56.9) | n.s. | |
 Marital status (% single) | 25 (31.3) | 47 (39.8) | n.s. | 27 (45.0) | 20 (34.5) | n.s. | |
 Lives alone (% yes) | 23 (28.7) | 42 (35.6) | n.s. | 24 (40.0) | 18 (31.0) | n.s. | |
 Health status (VAS 0–10) | 5.5 (2.0) | 6.0 (1.8) | ** | 6.1 (1.9) | 6.0 (1.7) | n.s. | |
 Co-morbidity (% yes) | 65 (81.2) | 90 (76.3) | n.s. | 42 (70.0) | 48 (82.8) | * | |
 Needs constant supervision (% yes) | 22 (27.5) | 23 (19.5) | n.s. | 16 (26.7) | 7 (12.1) | ** | |
 Care dependence (VAS 0–10) | 7.5 (2.5) | 6.7 (2.3) | ** | 7.2 (2.3) | 6.2 (2.3) | ** | |
Informal carers | |||||||
 Age (years) | 68.8 (12.0) | 65.1 (13.3) | ** | 62.9 (13.4) | 67.3 (13.0) | * | |
 Gender (% female) | 60 (75.0) | 73 (61.9) | ** | 39 (65.0) | 34 (58.6) | n.s. | |
 Marital status (% single) | 15 (18.8) | 18 (15.3) | n.s. | 7 (11.7) | 11 (19.0) | n.s. | |
 Children at home (% yes) | 5 (6.2) | 14 (11.9) | n.s. | 7 (11.7) | 7 (12.1) | n.s. | |
 Education level (% high) | 21 (26.3) | 33 (28.0) | n.s. | 17 (28.3) | 16 (27.6) | n.s. | |
 Employed (% yes) | 18 (22.5) | 39 (33.1) | * | 25 (41.7) | 14 (24.1) | ** | |
 Health status (VAS 0–10) | 6.9 (1.7) | 7.6 (1.4) | *** | 7.7 (1.5) | 7.5 (1.4) | n.s. | |
 Well-being (VAS 0–10) | 5.9 (2.0) | 6.7 (1.5) | *** | 6.7 (1.5) | 6.7 (1.5) | n.s. | |
Relationship | Â | ||||||
 Care recipient is partner (% yes) | 52 (65.0) | 57 (48.3) | ** | 23 (38.3) | 34 (58.6) | ** | |
 Care recipient is parent (in-law) (% yes) | 23 (28.7) | 51 (43.2) | ** | 31 (51.7) | 20 (34.5) | ** | |
 Co-residents (% yes) | 54 (67.5) | 62 (52.5) | ** | 26 (43.3) | 36 (62.1) | ** | |
Objective burden | Â | ||||||
 Duration of caregiving (years) | 3.4 (1.8) | 3.1 (2.0) | n.s. | 4.0 (2.0) | 4.8 (2.1) | n.s. | |
 Intensity of caregiving | (in days per week) | 5.5 (2.4) | 4.4 (2.8) | *** | 4.1 (2.8) | 4.9 (2.8) | n.s. |
(in hours per week) | 44.7 (40.8) | 34.5 (41.7) | * | 35.5 (43.6) | 33.4 (40.0) | n.s. | |
 Formal care at home (% yes) | 59 (73.8) | 87 (73.7) | n.s. | 47 (78.3) | 40 (69.0) | n.s. | |
 Support by other informal carers (% yes) | 44 (55.0) | 64 (54.2) | n.s. | 36 (60.0) | 28 (48.3) | n.s. | |
 Adjustments: | - Adjusted working hours (if applicablea) | 27 (33.3) | 24 (20.5) | n.s. | 19 (32.0) | 0 (0.0) | ** |
- Reduced volunteer work (if applicableb) | 31 (38.9) | 49 (41.9) | n.s. | 27 (44.4) | 22 (38.5) | n.s. | |
- Abandoned hobbies (if applicablec) | 45 (56.5) | 37 (31.3) | *** | 20 (33.3) | 17 (29.2) | n.s. | |
Subjective burden | Â | ||||||
 Caregiver Strain Index | 9.3 (2.6) | 7.0 (2.9) | *** | 7.4 (2.6) | 6.5 (3.1) | n.s. | |
 Self-Rated Burden | 7.4 (1.5) | 5.0 (2.0) | *** | 5.1 (1.8) | 4.9 (2.2) | n.s. |