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Table 1 Characteristics of family caregivers and care recipients

From: “I see myself as part of the team” – family caregivers’ contribution to safety in advanced home care

Caregivers Pseudonym

Age of caregiver

Gender of caregiver

Level of Education

Employment status

Relationship to the care recipient

Living arrangement

Years of experience of HMV in the home

BSFC Results*

Care recipients Disease group

Hours of HMV

Hours of nursing service

IV or NIV

Mrs Becker, Katrin

31

Female

High School

half-time employment

daughter

separated from the patient

1

40

neuromuscular disorder

continuous

24hs

IV

Mrs Wagner, Monika

63

Female

College or University

part-time retirement

wife

together with the patient

2

13

neuromuscular disorder

continuous

24hs

IV

Mrs Yilmaz, Fatma

60

Female

High School

full-time employment

wife

together with the patient

7

23

neuromuscular disorder

continuous

24hs

IV

Mr Meyer, Peter

56

Male

College or University

early retirement

son

separated from the patient

10

27

pulmonary disease

continuous

24hs

IV

Mrs Wolf, Christa

71

Female

Basic

retirement pension

wife

together with the patient

1

16

neuromuscular disorder

>  16hs

24hs

IV

Mr Richter, Karl

79

Male

College or University

retirement pension

husband

separated from the patient

missing

missing

vegetative state

>  16 hs

24hs

IV

Mrs Bauer, Ursula

70

Female

High School

retirement pension

mother

together with the patient

41

19

tetra paresis

<  16 hs

9hs

IV

Mrs Braun, Sabine

56

Female

Basic

early retirement pension

wife

together with the patient

6

21

Tetra paresis

<  16 hs

without nursing service

IV

Mrs Schulz, Angelika

62

Female

Basic

half-time employment

sister

separated from the patient

4

28

metabolic disease

continuous

24hs

IV

Mrs Werner, Gabrielle

54

Female

High School

full-time employment

wife

separated from the patient

3

23

neuromuscular disorder

continuous

24hs

IV

Mrs König, Renate

61

Female

High School

early retirement pension

spouse

separated from the patient

1

37

neuromuscular disorder

continuous

24hs

IV

Mrs Peters, Birgit

59

Female

High School

no gainful employment

mother

together with the patient

41

7

neuromuscular disorder

continuous

8hs

NIV

Mrs Koch, Ingrid

69

Female

Missing

retirement pension

wife

together with the patient

missing

missing

infectious disease

continuous

8hs

IV

Mrs Zimmermann, Andrea

56

Female

Basic

unemployment

mother

together with the patient

15

45

tetra paresis

10hs

11hs

NIV

Mr Hoffmann, Günther

83

Male

High School

retirement pension

husband

together with the patient

14

31

neuromuscular disorder

continuous

24hs

IV

  1. *BSFC Results: no/little burden: 0–24 points, moderate burden: 25–55 points, severe burden: 56–84 points