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Table 1 Characteristics of family caregivers and care recipients

From: “I see myself as part of the team” – family caregivers’ contribution to safety in advanced home care

Caregivers Pseudonym Age of caregiver Gender of caregiver Level of Education Employment status Relationship to the care recipient Living arrangement Years of experience of HMV in the home BSFC Results* Care recipients Disease group Hours of HMV Hours of nursing service IV or NIV
Mrs Becker, Katrin 31 Female High School half-time employment daughter separated from the patient 1 40 neuromuscular disorder continuous 24hs IV
Mrs Wagner, Monika 63 Female College or University part-time retirement wife together with the patient 2 13 neuromuscular disorder continuous 24hs IV
Mrs Yilmaz, Fatma 60 Female High School full-time employment wife together with the patient 7 23 neuromuscular disorder continuous 24hs IV
Mr Meyer, Peter 56 Male College or University early retirement son separated from the patient 10 27 pulmonary disease continuous 24hs IV
Mrs Wolf, Christa 71 Female Basic retirement pension wife together with the patient 1 16 neuromuscular disorder >  16hs 24hs IV
Mr Richter, Karl 79 Male College or University retirement pension husband separated from the patient missing missing vegetative state >  16 hs 24hs IV
Mrs Bauer, Ursula 70 Female High School retirement pension mother together with the patient 41 19 tetra paresis <  16 hs 9hs IV
Mrs Braun, Sabine 56 Female Basic early retirement pension wife together with the patient 6 21 Tetra paresis <  16 hs without nursing service IV
Mrs Schulz, Angelika 62 Female Basic half-time employment sister separated from the patient 4 28 metabolic disease continuous 24hs IV
Mrs Werner, Gabrielle 54 Female High School full-time employment wife separated from the patient 3 23 neuromuscular disorder continuous 24hs IV
Mrs König, Renate 61 Female High School early retirement pension spouse separated from the patient 1 37 neuromuscular disorder continuous 24hs IV
Mrs Peters, Birgit 59 Female High School no gainful employment mother together with the patient 41 7 neuromuscular disorder continuous 8hs NIV
Mrs Koch, Ingrid 69 Female Missing retirement pension wife together with the patient missing missing infectious disease continuous 8hs IV
Mrs Zimmermann, Andrea 56 Female Basic unemployment mother together with the patient 15 45 tetra paresis 10hs 11hs NIV
Mr Hoffmann, Günther 83 Male High School retirement pension husband together with the patient 14 31 neuromuscular disorder continuous 24hs IV
  1. *BSFC Results: no/little burden: 0–24 points, moderate burden: 25–55 points, severe burden: 56–84 points