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Table 3 Participants’ responses during the consultation

From: Genetics education program to help public health nurses improve their knowledge and enhance communities’ genetic literacy: a pilot study

Categories Code of responses during consultation
Extract problems with genetic disorders Summarize the anxiety
Check the facts about genetic disorders
Organize by listening to the necessary narratives of the person
Share your concerns about heredity disorders
Ask why they thought they inherited the disorder
Gather information for identifying the genetic disorder
Determine if the person’s troubles are hidden
Confirm the fact that you thought it was inherited
Confirm knowledge about illness
Listen to their understanding of the disease
Pay attention to their family background and life
Accept anxiety about getting the same disease
Ask about their lifestyle
Ask about their life
Pay attention to and manage previous living conditions
Indicate the problem
Make sure that you express you are very worrieda
Identify problems from statements and appearances
Determine issues based on information and prioritize
Ask what the person wants to do in the future
Promote awareness of other causes of health deterioration
Pay attention to medical condition/treatment
Check the process until the start of treatment
Paying attention to the treatment status and changes toward problem solving
Collect information about their health
Providing advice and thoughts potentially required for individual life Suggest a countermeasure
Thinking together while advising the person on what they think is necessary
Do not get preoccupied with hereditary conditions
Lead a safe life
Check what can be advised
Health guidance for life improvement
Health guidance closely related to daily life
Provide information about what you can do
Promote health behaviors such as undergoing regular medical checkups
Create an opportunity to appraise your lifestyle
Appraise lifestyle habits other than heredity-related aspects
Create an opportunity to appraise patient’s lifestyle
Thinking together about ways to improve the situation
Encourage the patient to notice the problem
Notice the problemb
Suggest a solution based on what you can do
Suggest what could be improved
Providing people with accurate information about genetics Assess the risk of onset
Thinking about ways to reduce the risk of onset
Providing the correct information
Providing expert knowledge to reduce anxiety
Explain the relationship between lifestyle and heredity
Tell the possibility of inheritance
Respect the will of the other person
Explain potential genetic effects
Explain environmental factors
Suggest preventive lifestyle behaviors
Explain precautions in daily life and help prevent onset
Informing the person of potential genetic risks
Suggest what can be improved to delay the onset
Give an explanation that can be understood by the other person
Introducing the person to an appropriate specialized organization Introduce them to a specialized institution
Introduce the person to doctors and other necessary healthcare institutions and healthcare professionals
Introduce the person to a professional consultation agency
  1. a The consultant was asked to express that they are very worried
  2. b The consultant was asked to identify the problem