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Table 3 Participants’ responses during the consultation

From: Genetics education program to help public health nurses improve their knowledge and enhance communities’ genetic literacy: a pilot study

Categories

Code of responses during consultation

Extract problems with genetic disorders

Summarize the anxiety

Check the facts about genetic disorders

Organize by listening to the necessary narratives of the person

Share your concerns about heredity disorders

Ask why they thought they inherited the disorder

Gather information for identifying the genetic disorder

Determine if the person’s troubles are hidden

Confirm the fact that you thought it was inherited

Confirm knowledge about illness

Listen to their understanding of the disease

Pay attention to their family background and life

Accept anxiety about getting the same disease

Ask about their lifestyle

Ask about their life

Pay attention to and manage previous living conditions

Indicate the problem

Make sure that you express you are very worrieda

Identify problems from statements and appearances

Determine issues based on information and prioritize

Ask what the person wants to do in the future

Promote awareness of other causes of health deterioration

Pay attention to medical condition/treatment

Check the process until the start of treatment

Paying attention to the treatment status and changes toward problem solving

Collect information about their health

Providing advice and thoughts potentially required for individual life

Suggest a countermeasure

Thinking together while advising the person on what they think is necessary

Do not get preoccupied with hereditary conditions

Lead a safe life

Check what can be advised

Health guidance for life improvement

Health guidance closely related to daily life

Provide information about what you can do

Promote health behaviors such as undergoing regular medical checkups

Create an opportunity to appraise your lifestyle

Appraise lifestyle habits other than heredity-related aspects

Create an opportunity to appraise patient’s lifestyle

Thinking together about ways to improve the situation

Encourage the patient to notice the problem

Notice the problemb

Suggest a solution based on what you can do

Suggest what could be improved

Providing people with accurate information about genetics

Assess the risk of onset

Thinking about ways to reduce the risk of onset

Providing the correct information

Providing expert knowledge to reduce anxiety

Explain the relationship between lifestyle and heredity

Tell the possibility of inheritance

Respect the will of the other person

Explain potential genetic effects

Explain environmental factors

Suggest preventive lifestyle behaviors

Explain precautions in daily life and help prevent onset

Informing the person of potential genetic risks

Suggest what can be improved to delay the onset

Give an explanation that can be understood by the other person

Introducing the person to an appropriate specialized organization

Introduce them to a specialized institution

Introduce the person to doctors and other necessary healthcare institutions and healthcare professionals

Introduce the person to a professional consultation agency

  1. a The consultant was asked to express that they are very worried
  2. b The consultant was asked to identify the problem