Comparing the quality of care for long-term ventilated individuals at home versus in shared living communities: a convergent parallel mixed-methods study

Table 5 Characteristics and burden of the family caregivers in the PH versus SLC groups

	PH		SLC		Total		P value	P adjusted ^a
Subjects, N	5		13		18
Female, n (%)	4	(80.0)	6	(46.2)	10	(55.6)	.314	>.999
Age, years; M (±SD)	52.80	(±5.36)	51.75	(±14.52)	52.06	(±12.34)	.879	>.999
Relationship to the VI, n (%)							.022	.135
Spouse or partner	2	(40.0)	5	(38.5)	7	(38.9)
Mother or father	3	(60.0)	0	0	3	(16.7)
Son or daughter	0	0	5	(38.5)	5	(27.8)
Other	0	0	3	(23.1)	3	(16.7)
Shared household living, n (%)	5	(100)	0	0	5	(27.8)	<.001*	<.001*
Relatives involved in nursing, n (%)	2	(40.0)	0	0	2	(11.1)	.065	.327
Burden of relatives, n (%)							>.999	>.999
Low burden BSFC-s (0-4)	1	(20.0)	3	(27.3)	4	(25.0)
Moderate burden BSFC-s (5-14)	2	(40.0)	3	(27.3)	5	(31.3)
High burden BSFC-s (15-30)	2	(40.0)	5	(45.5)	7	(43.8)
BSFC-s summary score, M (±SD)	13.20	(±10.18)	12.64	(±8.55)	12.81	(±8.74)	.910	>.999

N = 18. Data are presented as absolute numbers (n) and relative frequencies (%) or as the means and standard deviations (SD)
Missing values: age, years (n = 1), burden of relatives and BSFC summary score (n = 2 each)
Abbreviations: BSFC-s Burden Scale for Family Caregivers – short, PH Private home, SLC Shared living community, VI Ventilated individual
*Significant at p < 0.05
^aAdjusted with Bonferroni–Holm correction for multiple testing

ISSN: 1472-6955