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Table 6 Person-centred care for people on home mechanical ventilation

From: Comparing the quality of care for long-term ventilated individuals at home versus in shared living communities: a convergent parallel mixed-methods study

Picker principles (deductive)

Sub-codes (inductive)

n a

1. Fast access to reliable health advice

• Being integrated in a safe health care network

13

• Coping with inappropriate health care structures

4

• Fighting for a high-quality care

24

2. Effective treatment delivered by trusted professionals

• Feeling comfortable with the personal care situation

115

• Feeling between hope and reality – exploiting rehabilitation potentials

10

• Feeling insecure due to staff and skills shortage

39

3. Continuity of care and smooth transitions

• Moving into a world of uncertainty

4

• Welcoming visitors in the safety of the own home

9

• Going on a care journey in good company

13

4. Involvement in decisions and respect for preferences

• Balancing dependence and independence

57

• Feeling accepted with own needs and preferences

41

• Enabling time for relationships with family and friends

34

5. Clear information, communication, and support for self-care

• Being supported in developing knowledge and confidence

17

• Being alone with questions and decisions

14

6. Involvement of, and support for, family and carers

• Being ripped out of life and returning to normal

19

• Caring hand in hand

63

• Being part of a family – being cared for

36

• Dealing with burdens and challenges

69

7. Emotional support, empathy and respect

• Blurring boundaries

6

• Living with a shadow – living with assistance

15

• Feeling isolated and defenceless

11

8. Attention to physical and environmental needs

• Communicating and being understood

12

• Dealing with complex care needs and complex planning

34

• Improving participation through technology

37

• Balancing safety and living an active life

46

  1. aNumber of meaning units per sub-code