Picker principles (deductive) | Sub-codes (inductive) | n a |
---|---|---|
1. Fast access to reliable health advice | • Being integrated in a safe health care network | 13 |
• Coping with inappropriate health care structures | 4 | |
• Fighting for a high-quality care | 24 | |
2. Effective treatment delivered by trusted professionals | • Feeling comfortable with the personal care situation | 115 |
• Feeling between hope and reality – exploiting rehabilitation potentials | 10 | |
• Feeling insecure due to staff and skills shortage | 39 | |
3. Continuity of care and smooth transitions | • Moving into a world of uncertainty | 4 |
• Welcoming visitors in the safety of the own home | 9 | |
• Going on a care journey in good company | 13 | |
4. Involvement in decisions and respect for preferences | • Balancing dependence and independence | 57 |
• Feeling accepted with own needs and preferences | 41 | |
• Enabling time for relationships with family and friends | 34 | |
5. Clear information, communication, and support for self-care | • Being supported in developing knowledge and confidence | 17 |
• Being alone with questions and decisions | 14 | |
6. Involvement of, and support for, family and carers | • Being ripped out of life and returning to normal | 19 |
• Caring hand in hand | 63 | |
• Being part of a family – being cared for | 36 | |
• Dealing with burdens and challenges | 69 | |
7. Emotional support, empathy and respect | • Blurring boundaries | 6 |
• Living with a shadow – living with assistance | 15 | |
• Feeling isolated and defenceless | 11 | |
8. Attention to physical and environmental needs | • Communicating and being understood | 12 |
• Dealing with complex care needs and complex planning | 34 | |
• Improving participation through technology | 37 | |
• Balancing safety and living an active life | 46 |