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Table 3 Patients’ and HCPs’ experience of the nursing care, their similarities, and differences

From: “I would stress less if I knew that the nurse is taking care of it”: Multiple Sclerosis inpatients’ and health care professionals’ views of their nursing-experience and nursing consultation in rehabilitation—a qualitative study

Patients’ perspective

Similarities between patients and HCPs'

HCPs’ perspective

 

Need for nursing care (independent patient)

 

Consider oneself as not in need for nursing care

Same definition: No need for nursing care was described in case of patients who are independent in physical activities like toilet hygiene. The focus on the rehabilitation of these patients is on therapies

Regardless patients independence, all MS patients demonstrate needs for nursing care (e.g. being available and present for patients).

 

The nurse as contact person

 

Targeted selection of contact persons by patients with long illness histories, many years of rehabilitation experience and need a lot of nursing services

Same difficulties: To identify a contact person. Different disciplines have primary contact persons

Choice of a contact person depends on situational factors and already existing trusty relationship

Unspecific selection of contact persons by patients with new diagnose, independent in nursing services, less rehabilitation experience

 

Unspecific selection of contact person by: patients with many years of rehabilitation experience

 

Definition, advantages and disadvantages of a continuous nursing care

 

Supplement advantages: Nursing care is more tailored to the needs of MS patients

Same definition of continuous care: To be cared for by the same nurse every day. 

This includes same required competencies in in-depth MS knowledge

Same advantages of continuity: No loss of information

Supplement definition: To be available 24/7

Disadvantages: HCPs suffer from demanding patients

  1. Abbreviations: 24/7 Be available 24 h at seven days, HCP Health care professionals