Table 1 Interview guide for older residents and their families
Residents 1. How do you feel about your present health condition compared with others or compared with how it was last year? 2. What will you worry about when you are approaching the end of life? 3. If your condition becomes severe, what type of care or treatment would you choose? How will you talk to your family members about this choice? 4. In what kind of situation would you prefer to talk about issues related to end-of-life treatment or care with your family members? Why? 5. What are your opinions with regard to signing advance directives for yourself? 6. In terms of end-of-life care, what do you think your family should do with regard to fulfilling their duty of filial piety? 7. What would you like to say to your family members about your end-of-life care preferences but that you think are difficult to raise during discussions with them? | |
Residents’ relatives 1. If the resident were at the end of life, how would you feel? 2. If the condition of the resident worsens, what type of care or treatment would you want them to have? 3. In what kind of situation would you prefer to talk about issues related to end-of-life treatment or care with the resident? Why? 4. Do your family members or the resident not like to talk about issues related to end-of-life care with each other? Why? 5. What do you think about making the end-of-life care decisions in advance for the resident? 6. What are your opinions about signing advance directives for the resident? 7. If the resident tells your family that they want to sign their own advance directives, how would you feel? Would you respect their decision? Why? 8. What things do you want to say to the resident about end-of-life care choices but you think are difficult to raise in discussions with them? |