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Table 3 Overview included studies

From: Nurses’ experiences of caring for patients with intellectual developmental disorders: a systematic review using a meta-ethnographic approach

Study Study aim Sample and context Methodological approach Data collection and analysis 2nd Order Concepts LOA synthesis Quality appraisal (Toye et al., 2013)
Blackmore, 2001, United Kingdom. (S23) Explore learning disability nurses´ perceptions about their role in advocating for clients who have ID + physical, sensory and communication disabilities N = 8 RNLDs Gender not known Community Trust, LD Directorate Generic qualitative design Semi-structured interviews Constant comparison Translatable 2nd order concepts n = 2 Non-translatable 2nd order concepts n = 4 [Fa] Work against negative attitudes and alienation [M] Entail advocacy and safe guarding Fatally flawed paper
Boarder, 2002, United Kingdom. (S28) Obtain an overview of Community Learning Disability Nurses´ perceptions of their work N = 20 RNLDs Gender not known NHS Trusts in Wales Generic qualitative design Semi-structured interviews Content analysis Translatable 2nd order concepts n = 3 Non-translatable 2nd order concepts n = 1 [Fa] Work against negative attitudes and alienation [Ga] Raise the bar in care for this patient group [Na] Understands the complexity of this patient group Fatally flawed paper
Campbell, 2011, United Kingdom. (S16) Describe participants’ emotional response to violence and to explore what support they require in dealing with constant exposure to workplace violence. N = 6 RNs Gender not known Unit for adults with ID and challenging behaviour Generic qualitative design Semi-structured interviews, Thematic analysis Translatable 2nd order concepts n = 2 Non-translatable 2nd order concepts = 0 [Ja] Take unpredictable situations into account Satisfactory paper
Donovan, 2012, United Kingdom. (S1) Describe the experiences of Learning Disability Nurses when they are with clients who may be in pain but who cannot communicate their feelings verbally. N = 8 RNIDs Gender not known Care homes [NHS Trust] Phenomenology Unstructured interviews Translatable 2nd order concepts n = 2 Non-translatable 2nd order concepts n = 1 Aa] Based on long-term relationships [B] Rest its foundation on trust [Ca] Go beyond verbal communication alone Fatally flawed paper
Doody et al., 2012, Northern Ireland. (S2) Explore the experiences of RNIDs caring for older people with ID. N = 7 RNIDs ♀ 5 + ♂ 2 Voluntary service providing community care in residential settings Phenomenology Semi-structured interviews Thematic analysis Translatable 2nd order concepts n = 3 Non-translatable 2nd order concepts = 0 [Aa] Based on long-term relationships [D] Be forward planning [E] Include relevant others to offer quality care [Fa] Work against negative attitudes and alienation [Ga] Raise the bar in care for this patient group [H] Acknowledge the person behind the label of disability [I] Based on evidence-based practice Fatally flawed paper
Fitzgerald et al., 2013, Ireland. (S18) Explore nurses´ perceptions of their role in the area of ID care N = 7 RNs ♀ 7 Community residential service Generic qualitative design Semi-structured interviews Latent content analysis Translatable 2nd order concepts n = 2 Non-translatable 2nd order concepts n = 2 [Aa] Based on long-term relationships [Ca] Go beyond verbal communication alone [L] Inter-professional [M] Entail advocacy and safe guarding Fatally flawed paper
Focht-New, 2012, USA. (S29) Describe RNs experiences of teaching for people with IDD N = 23 RNs Gender not known Learning disability community trust Grounded theory Interviews, focus group interviews, non-participant observations Constant comparison Translatable 2nd order concepts n = 1 Non-translatable 2nd order concepts n = 1 [B] Rest its foundation on trust [Ga] Raise the bar in care for this patient group [H] Acknowledge the person behind the label of disability Fatally flawed paper
Hellzen et al., 2004, Sweden. (S5) Illuminate the meaning of being a nurse for an extremely provoking patient with ID N = 8 Enrolled nurses ♀ 5 + ♂ 3 Group Dwelling Phenomenology Narrative interviews Constant comparison Translatable 2nd order concepts n = 2 Non-translatable 2nd order concepts n = 1 [Ja] Take unpredictable situations into account Satisfactory paper
Lee & Kiemle, 2014, United Kingdom. (S7) Gaining an in-depth understanding of the day-to-day experience of nurses working with people diagnosed with both PD and ID N = 9 RNs ♀ 7 + ♂ 2 Medium-secure and low secure units Interpretive phenomenology Semi-structured interviews, Interpretative phenomenological analysis Translatable 2nd order concepts n = 3 Non-translatable 2nd order concepts = 0 [Aa] Based on long-term relationships [Fa] Work against negative attitudes and alienation [H] Acknowledge the person behind the label of disability [Ja] Take unpredictable situations into account Satisfactory paper
Li & Ng, 2008, United Kingdom. (S8) Explore nurses´ experiences in caring for dying patients with profound learning disabilities N = 5 RNs ♀ 3 + ♂ 2 Residential homes in one PCT in the South of England Generic qualitative design Open-ended semi-structured interviews Constant comparison Translatable 2nd order concepts n = 2 Non-translatable 2nd order concepts = 0 [Aa] Based on long-term relationships [K] Knowledge and skills beyond the diagnosis (here IDD) [L] Inter-professional Fatally flawed paper
Marsham,2011, United Kingdom. (S31) Explore the experiences of RNIDs communicating with adults with ID who use N = 8 RNLDs ♀ 8 Descriptive phenomenology Semi-structured interviews Phenomenological analysis Translatable 2nd order concepts n = 6 Non-translatable 2nd order concepts = 0 [Ca] Go beyond verbal communication alone [E] Include relevant others to offer quality care [G*] Raise the bar in care for this patient group [H] Acknowledge the person behind the label of disability [L] Inter-professional [Na] Understand the complexity of this of patient group Fatally flawed paper
Martin et al., 2012a, Ireland. (S10) Explore the experiences of RNIDs communicating with adults with ID who use non-verbal communication N = 8 RNLDs ♀ 8 Irish residential service for people with IDD Phenomenology Semi-structured interviews Phenomenological analysis Translatable 2nd order concepts n = 1 Non-translatable 2nd order concepts = 0 [Aa] Based on long-term relationships [B] Rest its foundation on trust Satisfactory paper
Martin et al., 2012b, Ireland. (S11) Explore the experiences of RNIDs communicating with adults with ID who use non-verbal communication N = 8 RNLDs ♀ 8 Irish residential service for people with IDD Phenomenology Semi-structured interviews Phenomenological analysis Translatable 2nd order concepts n = 2 Non-translatable 2nd order concepts n = 1 [Ca] Go beyond verbal communication alone [L] Inter-professional Fatally flawed Paper
Morton-Nance & Schafer, 2012, United Kingdom. (S12) Explore the experiences of RNLD and district nurses caring for people with a ID at the end of their lives N = 6, 3 RNs & 3 RNIDs ♀ 6 Two specialist health care settings Descriptive phenomenology Semi-structured interviews Thematic analysis Translatable 2nd order concepts n = 5 Non-translatable 2nd order concepts = 0 [Aa] Based on long-term relationships [Ca] Go beyond verbal communication alone [D] Forward planning [E] Include relevant others to offer quality care [Fa] Work against negative attitudes and alienation [Ga] Raise the bar in care for this patient group [H] Needing acknowledge the person behind the label of disability [L] Inter-professional Fatally flawed paper
Ndengeyingoma & Ruel, 2016, Canada. (S21) Explore nurses´ representations of caring for people with ID, intervention strategies they current use, and to identify needs to ensure quality care N = 18 RNs ♀ 14 + ♂ 4 2 general hospitals, 1 mental health hospital and 7 community care centres Generic qualitative design Semi-structured interviews Thematic analysis Translatable 2nd order concepts n = 3 Non-translatable 2nd order concepts = 0 [Ca] Go beyond verbal communication alone [E] Include relevant others to offer quality care [Ga] Raise the bar in care for this patient group [K] Knowledge and skills beyond the diagnosis (here IDD) [L] Inter-professional [Na] Understand the complexity of this patient group Satisfactory paper
Slevin & Sines, 2005, United Kingdom. (S26) Investigate the roles of community nurse for people with ID when caring for clients, and their careers, when the client is a person who indulges in challenging behaviours N = 22 RNLDs Gender not known1 UK NHS trusts Grounded theory In-depth face-to-face interviews Constant comparison Translatable 2nd order concepts n = 6 Non-translatable 2nd order concepts n = 3 [Aa] Based on long-term relationships [D] Be forward planning [E] Include relevant others to offer quality care [Fa] Work against negative attitudes and alienation [G*] Raise the bar in care for this patient group [I] Based on evidence-based practice [L] Inter-professional [Na] Understand the complexity of this patient group Satisfactory paper
Sowney & Barr, 2006, Northern Ireland. (S13) Explore the experiences of nurses working in accident and emergency departments in the assessment and provision of care to adults with ID N = 27 RNs Gender not known Hospital, accident and emergency departments Generic qualitative design Focus group interviews Thematic analysis Translatable 2nd order concepts n = 1 Non-translatable 2nd order concepts n = 1 [E] Include relevant others to offer quality care [K] Knowledge and skills beyond the diagnosis (here IDD) Key paper
Taua & Farrow, 2009, New Zealand. (S14) Identify and describe current nursing practice within an inpatient ID service and to identify factors that influence current nursing practice within an inpatient ID service N = 5 RNs Gender not known Inpatient ID service Ethnography Observations and semi-structured interviews Ethno semantic analysis Translatable 2nd order concepts n = 1 Non-translatable 2nd order concepts = 2 [Ja] Take unpredictable situations into account Key paper
  1. a = LOA synthesis interpreted to represent a tentatively distinct conceptualization of nursing