Table 4 “Experiences of individuals with chronic kidney disease in terms of their needs as kidney transplantation candidates and their perceptions of the advanced practice nurses’ role” semi-structured interview script

A.

To begin with, could you tell me a little about your disease, what treatment (dialysis) you are currently undergoing, when you were diagnosed with the disease and how it has evolved since then?

B.

How have you experienced this disease process? What has it meant to you?

C.

What does kidney disease mean for your family and those around you?

D.

What does it mean to you to be able to get a transplant?

E.

What does it mean for your family and your environment that you can be transplanted?

Needs during the KT study process

F.

Tell me, how did you get an appointment to go to the hospital the first day? As was?

G.

What was explained to you and your family that first day?

H.

What have you needed during the time you have made visits and tests at the Hospital?

I

Has your family needed anything?

J.

How many times have you had to come to the hospital from the first day until they told you that you were on the waiting list? Is it a lot or a little?

K.

Now that you are on the waiting list for a kidney transplant, do you need anything from the professionals who have treated you?

L.

Do you think your family needs something from the professionals?

The KT access nurse

M.

Who is the nurse who has accompanied you during the time that you have gone to the hospital to assess the KT?

N.

What does this nurse do and how has it helped you?

O.

Have you ever needed to contact her? How did you do it and why?

P.

Do you think that you will ever need to contact the professionals who have treated you? Why?

Q.

How would you like to be cared for by the nurse? What is most important to you?

R.

What have you and the nurse worked on together to prepare for the transplant? What important things for you while waiting to be transplanted have you explained to the nurse?

S.

Can you imagine there being no transplant nurse in the hospital? How do you think your attention would be?

Conclusion

T.

Finally, is there anything important that I have not asked you or that you would like to expand on?