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Table 2 Interview guide

From: District nurses’ experiences with involuntary treatment in dementia care at home: a qualitative descriptive study

Main question:

Can you describe to me which kind of involuntary treatment use in dementia care at home you’re mostly involved in as a district nurse?

Can you describe to me in detail one of these care situations that you just mentioned?

Based on the information provided, the following follow-up questions were asked:

1) Regarding the use of involuntary treatment

 • What just happened?

 • Which events led to the use of involuntary treatment? What preceded it?

 • How did you deal with this?

2) Decision-making process and actors involved

 • Who made the decision to use involuntary treatment?

 • How was the decision to use involuntary treatment made?

 • Who was involved in the decision-making process?

 • What was everyone’s role in the decision-making process?

 • What was your role?

 • What was the role of the other nurses and professional caregivers?

 • How did the other nurses and healthcare professionals deal with the decision to use involuntary treatment?

 • How was the PLWD and/or their representative involved in this decision?

3) Feelings of the caregiver

 • How did you experience the use of involuntary treatment with this patient?

 • What did you think when you first used involuntary treatment for this patient?

 • How do you feel now about the use of involuntary treatment with this patient?

 • What influence has this care situation had on you as a person?

 • How did the patient and their loved ones experience the use of involuntary treatment? And to what extent has this influenced your actions?

4) (Experienced) support

 • What support did you have in dealing with this care situation?

 • How did you experience this support?

 • Who helped you the most in dealing with this care situation?

 • How did you experience the support from the organisation?

 • What helps you the most in dealing with such care situations?

 • What did you miss concerning being able to provide good care in this situation?

 • Can you briefly describe what good care means to you?

5) Closing question

 • If you look back on this care situation, how would you have dealt with it now?

 • What did you learn from this care situation?

 • What advice would you give to new employees to deal with such situations?

  1. Depending on the remaining time, the interviewer will ask for another situation to be described. The interviewer takes into account that the interview will not last longer than 45 minutes.