Table 1 Sample characteristics (n = 20) ^a

MS / PD diagnosis, n (%)

13 (65) / 7 (35)

Age (years)

48 (37.5-67.25; 31–81)

Men / women, n (%)

8 (40) / 12 (60)

Educational level, n (%)

  Comprehensive school

3 (15)

  Upper secondary school

6 (30)

  University

11 (55)

Disease duration (years)

4.5 (1.75–9.5; 1–15)

Perceived health ^b,c

2 (2–3; 1–4)

Perceived disease severity, n (%) ^c

  Mild

11 (55)

  Moderate

7 (35)

  Severe

1 (5)

Duration of care at the outpatient clinic (years)

4.2 (1.3–8.5; 0.5–15)

Number of outpatient clinic visits past year

9 (3–13; 2–14)